Last Name Organization Clinical Trials State / Region Country
Richard Nowak
Principal Investigator
Yale University School of Medicine EPITOME II (ends 2020) Connecticut United States
Bryan Burnette
Principal Investigator
Vanderbilt University Medical Center FOR-DMD (ends 2024) Tennessee United States
Michael Hehir
Principal Investigator
University of Vermont Larner College of Medicine EPITOME I (ends 2018) Vermont United States
Erin DeSpain University of Utah Arimoclomo (ends 2017), FOR-DMD (ends 2024), CMT (ends 2017) Utah United States
Emma Ciafaloni
Executive Committee
Principal Investigator
University of Rochester Arimoclomo (ends 2017), FOR-DMD (ends 2024), HYPHOP (ends 2018), n/a New York United States
Christyn Edmundson
Principal Investigator
University of Pennsylvania Pennsylvania United States
Corrado Angelini University of Padova FOR-DMD (ends 2024) Italy
James Howard
Principal Investigator
University of North Carolina at Chapel Hill FOR-DMD (ends 2024), Methotrexa (ends 2019) North Carolina United States
Michael Benatar
Executive Committee
Principal Investigator
University of Miami EPITOME I (ends 2018), Methotrexa (ends 2019), n/a Florida United States
Andrea Swenson
Principal Investigator
University of Iowa Iowa United States
Chamindra Konersman University of California, San Diego California United States
Veronica Martin
Study Coordinator
University of California, Irvine Methotrexa (ends 2019), Rasagiline (ends 2021) California United States
Dubravka Dodig
Clinical Evaluator
University Health Network Canada
Tobin Chettiath
Principal Investigator
Ultragenyx Pharmaceutical California United States
Bakri Elsheikh
The Ohio State University Wexner Medical Center MG-SCIg (ends 2022), Methotrexa (ends 2019), n/a Ohio United States
Yaacov Anziska
Principal Investigator
SUNY-Downstate Medical Center FOR-DMD (ends 2024) New York United States
Deborah Bradshaw
Principal Investigator
SUNY Upstate Medical University New York United States
Neelam Goyal
Principal Investigator
Stanford University California United States
Jau-Shin Lou
Principal Investigator
Sanford Health North Dakota United States
Zachary Simmons
Principal Investigator
Penn State Hershey Medical Center Pennsylvania United States